RESOURCES

Below you will find information on the following:

Tuberous Sclerosis Organizations

Helpful Links

Brain and Epilepsy Organizations

Health Organizations

Hospitals and Clinics

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TUBEROUS SCLEROSIS ORGANIZATIONS

• Tuberous Sclerosis Complex International (TSCi)
• TS Alliance (USA)
• Tuberous Sclerosis Society of Germany
• Tuberous Sclerosis Society of Greece
• Tuberous Sclerosis Italy
• United Kingdom Tuberous Sclerosis Society

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HELPFUL LINKS

• Advocates for Special Kids
  • http://www.advocatesforspecialkids.ca/next.htm
• Music Therapy
  • http://www.musictherapy.ca/
• Conductive Education
  • http://www.conductive-education.org.uk/NICE%
    20Web% 20site%202005 /htm/
• Yoga 4 Kids
  • http://www.yoga4kids.org/
• Ketogenic Diet
  • http://www.neuro.jhmi.edu/Epilepsy/keto.html
• Atkins Diet
  • http://www.eurekalert.org/pub_releases/2003-
    12/jhmi-adm120203.php
  • http://www.atkins.com/
• VNS Therapy
  • http://www.vnstherapy.com/
• National Sleep Foundation
  • http://www.sleepfoundation.org/
• MEG/ EEG
  • http://www.aboutkidshealth.ca/clinicalAreas.asp?
    pageContent=EP-nh3-03a
• Medic Alert
  • http://www.medicalert.ca/
• Autism Treatments
  • http://www.autism.ca/
• Autism and PDD Support Network
  • http://www.autism-pdd.net/
• Canadian Institute of Health research
  • http://www.cihr-irsc.gc.ca/
• Canadian Mental Health Association
  • http://www.ontario.cmha.ca/
  • http://www.cmhawrb.on.ca/
• Public Health Agency of Canada
  • http://www.phac-aspc.gc.ca/mh-sm/mental
    health/pubs/anxiety/preface.htm
• Children and Adults with ADD
  • http://www.chaddcanada.org/
• Mental Help
  • http://www.mentalhelp.net/
• ADHD Foundation of Canada
  • http://www.adhdfoundation.ca/diffsec/links.htm
• Mood Disorders Society of Canada
  • http://www.mooddisorderscanada.ca/depression
    /index.htm
• Seizure Tracker
  • https://www.seizuretracker.com/

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BRAIN & EPILEPSY ORGANIZATIONS

• Canadian Epilepsy Alliance
  • http://www.epilepsymatters.com
• Montreal Neurological Institute and Hospital
  • http://www.mni.mcgill.ca/
• Childrens Neurology
  • http://www.childneurologysociety.org/
• Canadian Association of Child Neurology
  • http://www.ccns.org/ccns_information/cacn/cac
    n_intro.html
• Brain Tumor Foundation of Canada
  • http://www.btfc.org/braintumour.nsf/eng/home
• Epilepsy Canada
  • http://www.epilepsy.ca/
• Epilepsy Ontario
  • http://www.epilepsyontario.org/
• Epilepsy Durham
  • http://www.epilepsydurham.com/
• Finding a Cure for Epilepsy
  • http://www.ibe-epilepsy.org/
• Related Links
  • http://www.globalcampaign-epilepsy.org/
  • http://www.bcepilepsy.com/
  • http://www.epilepsyfoundation.org/
  • http://www.mni.mcgill.ca/epilepsy.html

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DEVELOPMENT ORGANIZATIONS & CENTRES

• National Institute for Learning Disabilities of Canada
  • http://www.nildcanada.org/
• Learning Disabilities Association of Quebec
  • http://www.aqeta.qc.ca/
• Learning Disabilities Association of Nova Scotia
  • http://ldans.nsnet.org/nsresources.html
• Advocates for Special Kids
  • http://www.advocatesforspecialkids.ca/next.htm
• Grandview Childrens Centre Oshawa, Ontario
  • http://grtc.ca/
• Bloorview Mcmillan Centre Toronto , Ontario
  • http://www.bloorviewmacmillan.on.ca/
• Children Treatment Centres in Ontario
  • http://ldans.nsnet.org/nsresources.html
• Canadian Association for Independent Living Centres
  • http://www.cailc.ca/
• Centre for Independent Living Toronto
  • http://www.cilt.ca/default.aspx
• Canadian Association for Community Living
  • http://www.cacl.ca/
• Alberta Association for Community Living
  • http://www.aacl.org/
• Community Living British Columbia
  • http://www.communitylivingbc.ca/index.htm
• Community Living Ontario
  • http://www.communitylivingontario.ca/
• Saskatchewan Association for Community Living
  • http://www.sacl.org/

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HEALTH ORGANIZATIONS

• Canadian Organization for Rare Disorders
  • http://www.raredisorders.ca/
• National Organization of Rare Disorders
  • http://www.rarediseases.org/
• Kidney Foundation of Canada
  • http://www.kidney.ca/
• SKIN - Canadian Dermatology of Canada
  • http://www.dermatology.ca/english/index.html
  • http://www.plasticsurgery.ca/
• Heart Institute for Children
  • http://www.thic.com/index.htm
• Canadian Pediatric Cardiology Association
  • http://www.cardioped-canada.org/cpca.asp#top
• Heart and Stroke Foundation of Canada
  • http://ww2.heartandstroke.ca/Page.asp?Page
    ID=24
• Autism Society Of Canada
  • http://www.autismsocietycanada.ca/
• Autism Canada Foundation
  • http://www.autismcanada.org/home.htm
• Canadian Lung Association
  • http://www.lung.ca/home-accueil_e.php
• LAM Canada
  • http://www.lamcanada.org/
• Canadian Institute of Health Research
  • http://www.cihr-irsc.gc.ca/e/193.html
• National Institute Health
  • http://www.cc.nih.gov/
• Rotherberg Institute
  • http://www.childhooddiseases.org/community_
    tsc.html
• Health Canada
  • http://www.hc-sc.gc.ca/index_e.html
• Genetics
• Genetics Home reference
  • http://ghr.nlm.nih.gov/condition=tuberoussclerosis
• Athena Diagnostics
  • http://www.athenadiagnostics.com/
• Genetics Professional Societies
  • http://www.kumc.edu/gec/prof/soclist.html
• Genes and Disease
  • http://www.ncbi.nlm.nih.gov/disease/TSC.html

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HOSPITALS & CLINICS

• TSC Clinic New York City
  • http://www.med.nyu.edu/cec/programs/tubero
    us.html
• Cincinnati TSC Clinic
  • http://www.cincinnatichildrens.org/svc/alpha/t/tub
    erous-sclerosis/default.htm
• Childrens Hospital and Research Centre
  • http://www.childrenshospitaloakland.org/t_heal
    thcare.cfm?id=184
• Childrens Hospital of Eastern Ontario
  • http://www.cheo.on.ca/
• Sick Childrens Hospital In Toronto
  • http://www.sickkids.on.ca/
• B.C. Childrens Hospital
  • http://www.bcchildrens.ca/default.htm
• Montreal Childrens Hospital
  • http://www.thechildren.com/index_flash.html
• Montreal Neurological Institute Hospital
  • http://www.mni.mcgill.ca/
• Mount Sanai Hospital in Toronto
  • http://www.mtsinai.on.ca/
• Canadian Hospital Directory
  • http://www.medi-fax.com/hospitals/Canada/dire
    ctory.as
• Cleveland Clinic
  • http://cms.clevelandclinic.org/neuroscience/