INFORMATION ON TS LIVING WITH TUBEROUS SCLEROSIS

Presently, the only treatment for those afflicted with Tuberous Sclerosis Complex is management of the seizures, special education for those who need it, and cosmetic treatment for those individuals who desire it. Treatment for the mildly and severely-affected is based on the individual's needs and may include the treatment options listed to the left.

Non-affected individuals are encouraged to have regular medical check-ups especially during ages 0-20 when the child's brain and body are developing.
The prognosis for the majority of people with Tuberous Sclerosis Complex is excellent. A high proportion of individuals who are afflicted lead normal lives and for most people, even those with severe handicaps, life expectancy is normal. However, premature death can result from serious disabilities related to the disorder.

Recent research has focused on behavior management, seizure management and genetics. Future research will greatly aid early and accurate diagnosis and treatment.