TSC In the News

Updates to the guidelines and beyond

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Two new papers have been published in Pediatric Neurology.

 

Updated International Tuberous Sclerosis Complex Diagnostic Criteria and Surveillance and Management Recommendations provide updated ‘gold standards’ for the diagnosis, surveillance and management of TSC.  The update to the guidelines take into account advances in both TSC research and treatments.

Beyond The Guidelines: How We Can Improve Healthcare For People With Tuberous Sclerosis Complex Around The World is a white paper that identifies three priorities and provides associated recommendations for improving TSC care around the world.

 

These two very important papers are a step forward in improving the lives of those with TSC.

TS Canada ST Survey

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May is TSC Awareness Month, and TS Canada ST is putting together an organizational plan for growing its services and volunteer base. We would like to hear from our TSC community about what resources, programs, and educational information to offer in the future. We are also updating our contact list.

 

Please fill out this brief 5-minute survey and give us feedback on what would be most helpful to you and your family.

 

https://survey.sogosurvey.com/r/JH3Zsf

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