TSC In the News

2021 TSC CLINIC PATIENT & FAMILY EXPERIENCE OF CARE SURVEY


Posted

The TSC Alliance would like to know about your experience at the TSC Clinic you/your child go for care.

Click here for information about the survey.

**Pour les familles/patients qui se rendent à la Clinique STB du CHU Sainte-Justine ou du CHUM, le sondage peut être complétée ici:

tscalliance.org/sondage

TS Canada ST Survey


Posted

May is TSC Awareness Month, and TS Canada ST is putting together an organizational plan for growing its services and volunteer base. We would like to hear from our TSC community about what resources, programs, and educational information to offer in the future. We are also updating our contact list.

 

Please fill out this brief 5-minute survey and give us feedback on what would be most helpful to you and your family.

 

https://survey.sogosurvey.com/r/JH3Zsf

TANDem Project


Posted

Great things are coming for those affected by TAND!

To know more about the TANDem Project, watch this video: Introduction to the TANDem project by Prof. Petrus de Vries and Prof. Anna Jansen

Read More...

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28febAll DayRare Disease Day

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