TSC In the News

Attention: Adults with TSC or parent/caregiver of a dependent adult with TSC


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Are you an adult with TSC or a parent/caregiver of a dependent adult with TSC?
Agnies van Eeghen, MD, PhD at Erasmus Medical Centre in Rotterdam, the Netherlands and her research team have developed a questionnaire for adults with TSC, called the Checklist for Adults with TSC or CHAT-TSC. In this questionnaire, adults with TSC or caregivers can indicate all of the problems experienced living with TSC.
Dr. Eeghen and her team are seeking volunteers to help test this questionnaire.
If you want to participate in this research project please click on this link http://www.123formbuilder.com/form-4405144/contactformulier then enter your name and email address, then click the button “stuur het bericht” (Send the Message).
For more information or questions about the research you can contact the Erasmus Study Team at Chat.tsc@erasmusmc.nl

North American Virtual Epilepsy Meeting


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The International League Against Epilepsy (ILAE) and the International Bureau for Epilepsy (IBE) is hosting their North American Virtual Epilepsy Meeting September 25-27, 2020. Registration info will be coming soon!
For more information and to view the program, visit www.epilepsycongress.org/naec/

COVID-19 and TSC


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Do you have questions regarding COVID-19 and TSC?  Here are some excellent resources:

COVID-19 Tips for ParentsCOVID-19 Conseils aux parents en situation de confinement

COVID-19-FAQ

COVID-19-Considerations for TSC Medical Professionals

COVID-19 Mental health resources for adults and children, including those with intellectual disabilities

For more comprehensive and up to date Canadian information, please visit Government of Canada Coronavirus Disease (COVID-19) website

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Events Calendar

28febAll DayRare Disease Day

15mayAll DayTSC Global Awareness Day

01junAll DayWorldwide LAM Awareness Day

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