TSC In the News

Annual General Meeting

Posted March 11, 2015

Tuberous Sclerosis Canada Sclérose Tubéreuse elected the Board of Directors and Executive committee at the Annual General Meeting on March 10, 2015.  Election results are as follows:

4-year term

Cathy Evanochko, Co-Chair

Melissa Cote

2-year term

Karen Shulist, Co-Chair

Ray Marco, Secretary

Jennifer Flinn, Director


We would like to thank Patricia Nolan for her years of dedication as a director with TSCST, we wish her nothing but the best moving forward.

TSC Patient meeting with Dr. Anil Kapoor, Hamilton

Posted January 27, 2014

Dr. Anil Kapoor, Director of the Hamilton/Niagara TSC Program and Professor of Surgery (Urology) at McMaster University is hosting a TSC Patient meeting. All families and caregivers are encouraged to attend. You will have the opportunity to hear Dr. Kapoor speak on TSC related issues and to meet and network with others.

Date/Time: TBD.  Meeting to be rescheduled

Location:  Juravinski Cancer Centre Lecture Theatre,  4th Floor Juravinski Cancer Centre at Hamilton Health Sciences building,  699 Concession Street Hamilton, Ontario

TAND (TSC Associated Neuropsychiatric Disorders)

Posted January 23, 2015

TSC is associated with a wide range of cognitive, behavioral and psychiatric manifestations which can be quite concerning to individuals and their families.  TAND (TSC Associated Neuropsychiatric Disorders) is a new terminology to describe these manifestations.  An introduction to TSC associated neuropsychiatric disorders (TAND) and the TAND checklist are now available online! Access and download the document here:

TAND checklist

Events Calendar

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15mayAll DayTSC Global Awareness Day
1junAll DayWorldwide LAM Awareness Day
10sep - 12All Day2015 International Research Conference on Tuberous Sclerosis Complex: From Treatment to Prevention--Let’s Cure TSC
28febAll DayRare Disease Day

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