The Canadian Organization for Rare Disorders is pleased to “partner” with the PARTNERS initiative described in the attachments. The goal of the initiative is to engage with the rare disease patient community to design and develop new diagnostic and therapeutic interventions.
To complete the survey online, go here:https://www.surveygizmo.com/s3/2118051/PARTNERS-poster
If you would rather take part in the group interview, you can register for your local session here: http://partnersnetwork.eventbrite.ca
For more information please visit the links below.
Press Conference Video: youtu.be/Lta3kLNOesw?a
Help support this endeavor and sign the petition: http://ow.ly/NosTk