TSC In the News

Special Education Information Call in Session – October 4, 2017 @ 8pm EST


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Children who have Tuberous Sclerosis Complex often have a variety of educational challenges, that can make school more difficult for them. Tune into this one-hour interactive session to hear about special education, how to work with your school, and what some of the educational challenges with TSC can be.

We will talk about Individual Education Plans, Individual Placement and Review Committees, Educational Assistant support, and the role of resource and special education teachers.
There will be an opportunity for some questions and answers at the end of the session

This session will be facilitated by Dr. Jennifer Flinn, from the Board of Directors for TSC Canada. As an Ontario educator, her expertise is in Ontario policy, however, much of the information will be applicable to all provinces.

Join us October 4th, 2017 at 8pm EST by calling 1 866 276 0948 ID# 7438904

Get involved in Rare Disease Day 2017!


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There are many ways to participate in Rare Disease Day 2017! The global theme for Rare Disease Day 2017 is research. Research brings hope to people living with rare diseases. Go here to find out how you can be involved: http://www.rarediseaseday.org/article/get-involved

Another way to get involved is to tell CORD your story!
CORD wants to hear from you! This is a great way to raise awareness about this year’s theme: how research brings hope to those living with rare disorders. Send us your testimonials!  Go to:  https://www.surveymonkey.com/r/researchtestimonials

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