Find a TSC Clinic

TSC Clinics

Tuberous sclerosis complex (TSC) clinics play an important role in improving the lives of those affected by TSC.  TSC clinics provide multidisciplinary care for children and adults with TSC within their clinics or through a referral network of specialists within their health network.

Below is a list of Canadian TSC clinics that have received a TSC Clinic designation with the TS Alliance TSC Clinic Network.  The TSC clinics have been peer reviewed and evaluated against the core standards developed by the TS Alliance.

Montreal, Quebec

CHU Sainte-Justine, University of Montreal

Director: Philippe Major, MD
Coordinator: Lucie Côté RN
Age Range Seen: Children only under age 18 years.
Clinic Frequency: Thursdays, every 2-3 weeks.

To schedule an appointment call (514) 345-6510
For additional clinic information, visit the clinic website

Centre Hospitalier de l’Université de Montréal (CHUM) **

**approval for a TSC Clinic designation with the TS Alliance TSC Clinic Network is pending

Director: Dr. Mark Keezer (neurologist and epileptologist)
Clinic nurse-clinician: Vanessa Léger
Age Range Seen: Adults 18 years and older.
For clinic information contact Vanessa at 514-890-8000 ext 26419.

Any new referrals require a formal consultation from either a primary physician or specialist.

Toronto, Ontario

Comprehensive Tuberous Sclerosis Complex Clinic at The Hospital for Sick Children

Director: Robyn Whitney, MD, FRCPC
Co-Director: Maria Zak, MN, NP
Coordinator: Valerie W. Chan, RN, BScN, CNN(C)
Age Range Seen: Children up to age 18 years
Clinic Frequency: One full Friday per month with additional clinics added as needed.
For clinic Information and to schedule an appointment, call (416) 813-7654 extension 201123 or email tsc.clinic@sickkids.ca

Families are invited to speak with their physician if they wish to be referred to the clinic. Their primary physician or specialist most involved in their child’s care can make a referral through the ARMs referral system in Neurology – TSC Clinic.

University Health Network, The Fred A. Litwin Family Centre in Genetic Medicine

Director: Raymond Kim, MD, PhD
Co-Director: Monika Madan, MD
Coordinator: Nicole Forster, MSc, CGC
Age Range Seen: Adults 18 years and older.
Clinic Frequency: Weekly on Wednesdays
For clinic information contact Nicole Forster at (416) 586-4800 extension 4220 and to schedule an appointment contact adultgenetics@uhn.ca or Reeshni Asokan at (416) 586-4800 extension 4220.

UHN Adult Clinic Brochure

Referrals to the UHN Adult TSC Clinic can be sent to:

The Fred A Litwin Family Centre in Genetic Medicine
60 Murray Street, Box 34, 3L-400
Toronto, Ontario M5T 3L9
Tel: 416-586-4800×4220
Fax: 416-619-5523

 

For a complete list of designated TSC clinics approved by the TS Alliance TSC Clinic Network, please visit:  https://www.tsalliance.org/individuals-families/tsc-clinics

 

Other Canadian Hospitals and Centers

Below is a list of Canadian Hospitals with TSC clinics or programs that have not been peer reviewed or evaluated by the TS Alliance TSC Clinic Network.

Vancouver, BC

TSC Clinic at BC Children’s Hospital, Vancouver, B.C.

Director: Dr. Mary B. Connolly
Age Range Seen: Children up to age 18 years

To contact the TSC Clinic at BC Children’s Hospital, please make a referral with the Neurology Department.

4480 Oak Street,
Vancouver BC
V6H 3V4 Canada
Tel 604 875 3684
Fax 604 875 2285

 Calgary, Alberta

Foothills Medical Center

TSC Clinic (c/o Glomerulonephritis Clinic)

Age Range Seen: Adults 18 years and older.
A physician specialist referral is needed to access this service.

For more information please contact:

Dr. Louis Giard
Foothills Medical Centre
Health Science Centre Area 6B
1403-29 St. NW
Calgary, AB T2N 2T9
Telephone: 403-944-3590
Fax: 403-283-4657

Edmonton, Alberta

Kaye Edmonton Clinic

Neurologists: Dr. Donald Gross and Dr. Trevor Steve
11400 University Avenue
Edmonton, AB
T6G 1Z1
780.407.5000
Epilepsy Clinic: 780.248.2346

Hamilton – Niagara, Ontario

St. Joseph’s Hospital Hamilton

Tuberous Sclerosis Complex (TSC) Program

Director: Anil Kapoor, MD, FRCSC

Dr. Chris Rabbat (Nephrologist)

Dr. Luis Morillo (Neurologist)

For program information please contact:

St. Joseph’s Hospital Hamilton – 3rd Floor- Institute of Urology,

Phone – 905-522-6536 Fax – 905-521 – 6195

London, Ontario

London Health Sciences Centre

TSC Network

The TSCN is a consultative clinic for adult patients with TSC, made up of specialists from a number of disciplines. Our network includes Dr. Andrew House (nephrology), Dr. Derek Debicki (neurology), Dr. Stephen Pautler (urology), Dr. Patrick Luke (urology), Dr. Marco Mura (respirology), Dr. Wei Jing Loo (dermatology), Dr. Natalya Karp (genetics), Dr. Raymond Lee (dentistry).

Referrals to any specialist in the TSCN provides an entry point to multidisciplinary care, while undifferentiated cases can be referred to Dr. House. We are happy to accept referrals for any adult with TSC, and also to ease transition from pediatric to adult follow up for children in their late teens.

Dr. Andrew House, Fax 519-663-3449

Ottawa, Ontario

The Ottawa Hospital 

Urology clinic

Chris Morash MD, FRCSC, Associate Professor of Surgery, University of Ottawa, Medical Director,

The Ottawa Hospital Prostate Cancer Assessment Centre

2nd Floor, CPCR Building, 501 Smyth Road, Ottawa Ontario K1H 8L6

Phone: 613-737-8899 ext. 71203

Fax: 613-739-6678

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