Tuberous Sclerosis Canada Sclérose Tubéreuse

Webinar: TSC related Angiomyolipoma – Management Strategies and Case Studies

Join Dr. Anil Kapoor on MAY 1, 2019 | 20:00 EST for a Webinar on TSC related Angiomyolipoma. Learning Objectives: By the end of this program, participants will: • Review TSC Disease and its manifestations • Learn how to recognize AMLs Associated with TSC • Review the Consensus Guidelines and Evidence Supporting the Guidelines • Discuss patient management options • Review two “real” life patient cases • Understand role of TSC CoE in Patient management and when to refer patients/families Click here to register May 1 TSC Webinar Flyer

TS Canada ST Educational Meeting – Toronto June 22nd, 2019

Registration is now open!! Join us for this one-day meeting on June 22nd, 2019 featuring leading international researchers and clinicians specializing in TSC to learn about the latest research updates, diagnosis and treatment of TSC in pediatrics and adults. For more information and to register for the Family Educational Meeting on Saturday June 22nd, 2019:   https://cvent.me/1qba9 For more information and to register for the Optional Niagara Falls Tour on Sunday, June 23, 2019:  https://cvent.me/Ww8MZ This meeting takes place in conjunction with the 2019 International TSC Research Conference: Changing the Course of TSC. We hope to see you there!

Comedy Night in Ottawa

Join TS Canada ST in a comedy night FUNdraiser on May 11th, 2019.  We promise there will be lots of laughs, chances of winning a 50/50 draw and a silent auction! Tickets are $20 and can be purchased by emailing: mcote430@gmail.com or jflinn@outlook.com See the comedy night flyer for more details. We hope to see you there!

2019 TS Canada ST Educational Meeting June 22 in Toronto!

Join us for this one-day meeting featuring leading international researchers and clinicians specializing in TSC to learn about the latest research updates, diagnosis and treatment of TSC in pediatrics and adults. This meeting takes place in conjunction with the 2019 International TSC Research Conference: Changing the Course of TSC.   Agenda and additional information for the Toronto Educational Meeting 2019

TSC Clinic Survey

We are looking for feedback on the Canadian TSC clinics that have been approved by the TS Alliance. This survey is for patients and families of the both Toronto SickKids TSC clinic and Montreal TSC clinic Only. We hope you will take the time to fill it out. https://www.surveymonkey.com/r/TSCclinicsurvey

TSC Education and Gathering Event – Calgary

Alberta Children’s Hospital is holding a Tuberous Sclerosis education and gathering event. When: Friday, January 11, 2019 Where: 4th floor auditorium, Alberta Children’s Hospital Time: 10:15 am to 5:00 pm Please see the event poster for additional information.  We hope to see you there! You must register by November 30th, 2018 by calling Barbara Fox at 403-955-7469 Event poster

Save the date for the 2019 International TSC Research Conference – June 20-22, 2019!

Check out the 2019 International Tuberous Sclerosis Complex Research Conference Poster for information on the keynote speaker, confirmed speakers and organization committee. Save the date 2019 Research Conference Poster  

2019 International TSC Research Conference – Toronto

TS Canada ST in partnership with the TS Alliance and the TS Alliance of Mexico is proud to be hosting the 2019 International TSC Research Conference in Toronto. June 20-22, 2019 Chelsea Hotel Toronto Co-Chairs: Elizabeth P. Henske, MD and Michael Wong, MD, PhD More information will become available in the coming months.  Make sure to sign up for updates on the TS Canada ST website.

CORD presents NATIONAL PHARMACARE WEBINAR DEBATES

The biggest changes in over 30 years to drug regulations and drug plans in Canada will be implemented over the next year. Will your access to prescription drugs get better … or worse? Will the Ontario Conservative government’s rollback on OHIP+ (excluding kids with private drug coverage) affect a proposed National Pharmacare program? It’s up to you! Get informed to get involved. The Canadian Organization for Rare Disorders invites you to learn more about the options for National Pharmacare. Click here for more info as well as an opportunity to share your opinion! Information on how to register for the webinars and other…

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Early Bird Deadline to Register for the 2018 World TSC Conference Ends June 1, 2018

Co-hosted by the Tuberous Sclerosis Alliance and Tuberous Sclerosis Complex International (TSCi) and dedicated to the memory of Keith Hall, the 2018 World TSC Conference will bring together families and individuals with TSC, caregivers, healthcare professionals, researchers, a wide array of exhibitors, and others from across the globe. The conference will be held at the Hilton Anatole Hotel in Dallas, Texas July 26-29, 2018! Register by Midnight on June 1, 2018 to get the lowest rate for the conference. Full conference registration is only $249 per person and covers educational sessions; breakfast, lunch and dinner; break snacks; and exhibit hall access. After June 1 the rate goes up to $350 per person for a…

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