Tuberous Sclerosis Canada Sclérose Tubéreuse

Canadian TSC Educational Series – Session 3 Video

For those who were unable to join us for the 3rd session of the Canadian TSC Educational Series for caregivers and patients with TSC, the video can be viewed in the links below. Management of epilepsy associated with TSC (PART 1) Management of epilepsy associated with TSC (PART 2) The next session ‘Introduction to TAND by Dr. Elisabetta Trinari’ is scheduled for November 14, 2024, from 6:00pm-7:00pm.  For more information and to register, please use the link below: Registration for the Canadian TSC Educational Series

Canadian TSC Educational Series – 3rd Session

Join us on September 12, 2024 from 6:00pm – 7:00pm EST. for the 3rd session of the Canadian TSC Educational Series for caregivers and patients with TSC.   This 3rd session will focus on the management of epilepsy associated with TSC. The symposium will be held on Google Meet. Don’t forget to register using the link below: Click here for link to: Registration for the Canadian TSC Educational Series We hope to see you there!

Caregiver sleep study

The University of Birmingham are conducting a study ‘Understanding Caregiver Experiences of Sleep Management Difficulties in Individuals with Tuberous Sclerosis Complex’. If you are a caregiver of a person with TSC who is currently experiencing sleep difficulties, participation in this study might be right for you. Please see the flyer for details.

Canadian TSC Educational Series – 2nd Session

Join us on Thursday June 13, 2024, at 6:00 pm EST for the 2nd session of the Canadian TSC Educational Series for caregivers and patients with TSC. This second session will focus on ‘What is routine follow-up in TSC: Across the ages’. The symposium will be held on Google Meet. Don’t forget to register using the link below: Click here for link to: Registration for the Canadian TSC Educational Series We hope to see you there!

TSC Awareness Month – fundraiser

Hi Everyone! May is TSC Awareness month. Cathy Evanochko is a member of our VIP group and Chair Person for the TSC Canada non-profit, charitable organization dedicated to raising public awareness and support for individuals with TSC and their families. Her daughter has TSC. Cathy created a fundraising website with Sipology to help raise funds to help with research and develop awareness about this disorder.  Use this shopping link to help support TSC Canada! https://fundraise-ca.sipology.com/collections/may-tsc-awareness 40% of all proceeds are returned to TSC Canada.  All items are priced $15 each and there is a flat shipping rate of $3 per…

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Canadian TSC Educational Series – Session 1 Video

For those who were unable to join us for the first session of the Canadian TSC Educational Series for caregivers and patients with TSC, we have posted the video here: Diagnosing TSC and Understanding its cause. The next session is scheduled for June 13, 2024, 6:00pm-7:00pm.  For more information and to register, please use the link below: Registration for the Canadian TSC Educational Series

Canadian TSC Educational Series

Join us at 7:00 pm EST on Thursday March 21, 2024 for the first session of the Canadian TSC Educational Series for caregivers and patients with TSC. The first session will focus on Diagnosing TSC and Understanding its cause.  Please use the link below to register. Registration for the Canadian TSC Educational Series

TSC Canada & TSC Alliance Research Collaboration Webinar

Did you miss the TSC Canada ST & TSC Alliance Research Collaboration Webinar?  Watch it here:

Webinar – Thursday December 14th @ 8:00pm ET

Please join the TSC Alliance and Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) on Thursday, December 14 at 8 pm ET to learn about the TSC Alliance’s ongoing research collaboration with Drs. Mark Keezer and Phillipe Major. They will be talking about ongoing efforts for the TSC Natural History Database and Biorepository and answer any questions regarding research for TSC in Canada. Please register for the webinar using the link below. Webinar Registration Link

BRI Symposium – Thursday November 16, 2023

BRI Symposium – Thursday November 16, 2023. The symposium is from 8:30 AM – 5:00 PM. Registration is free and attendees are welcome to attend virtually. The Keynote speaker is Dr. Petrus DeVries who will talk about both autism and TSC. https://hollandbloorview.ca/research-education/bloorview-research-institute/awards-events/bri-symposium