TSC In the News

Webinar: TSC related Angiomyolipoma – Management Strategies and Case Studies


Join Dr. Anil Kapoor on MAY 1, 2019 | 20:00 EST for a Webinar on TSC related Angiomyolipoma.

Learning Objectives:

By the end of this program, participants will:
• Review TSC Disease and its manifestations
• Learn how to recognize AMLs Associated with TSC
• Review the Consensus Guidelines and Evidence Supporting the Guidelines
• Discuss patient management options
• Review two “real” life patient cases
• Understand role of TSC CoE in Patient management and when to refer patients/families

Click here to register

May 1 TSC Webinar Flyer

TS Canada ST Educational Meeting – Toronto June 22nd, 2019


Registration is now open!!

Join us for this one-day meeting on June 22nd, 2019 featuring leading international researchers and clinicians specializing in TSC to learn about the latest research updates, diagnosis and treatment of TSC in pediatrics and adults.

For more information and to register for the Family Educational Meeting on Saturday June 22nd, 2019:   https://cvent.me/1qba9

For more information and to register for the Optional Niagara Falls Tour on Sunday, June 23, 2019:  https://cvent.me/Ww8MZ

This meeting takes place in conjunction with the 2019 International TSC Research Conference: Changing the Course of TSC.

We hope to see you there!

Comedy Night in Ottawa


Join TS Canada ST in a comedy night FUNdraiser on May 11th, 2019.  We promise there will be lots of laughs, chances of winning a 50/50 draw and a silent auction!

Tickets are $20 and can be purchased by emailing: mcote430@gmail.com or jflinn@outlook.com

See the comedy night flyer for more details.

We hope to see you there!

TSC Clinic Survey


We are looking for feedback on the Canadian TSC clinics that have been approved by the TS Alliance.

This survey is for patients and families of the both Toronto SickKids TSC clinic and Montreal TSC clinic Only. We hope you will take the time to fill
it out.


TSC Education and Gathering Event – Calgary


Alberta Children’s Hospital is holding a Tuberous Sclerosis education and gathering event.

When: Friday, January 11, 2019

Where: 4th floor auditorium, Alberta Children’s Hospital

Time: 10:15 am to 5:00 pm

Please see the event poster for additional information.  We hope to see you there!

You must register by November 30th, 2018 by calling Barbara Fox at 403-955-7469

Event poster



The biggest changes in over 30 years to drug regulations and drug plans in Canada will be implemented over the next year. Will your access to prescription drugs get better … or worse? Will the Ontario Conservative government’s rollback on OHIP+ (excluding kids with private drug coverage) affect a proposed National Pharmacare program? It’s up to you! Get informed to get involved.

The Canadian Organization for Rare Disorders invites you to learn more about the options for National Pharmacare. Click here for more info as well as an opportunity to share your opinion!

Information on how to register for the webinars and other details will be announced shortly.