TSC In the News

Caregiver sleep study


The University of Birmingham are conducting a study ‘Understanding Caregiver Experiences of Sleep Management Difficulties in Individuals with Tuberous Sclerosis Complex’.

If you are a caregiver of a person with TSC who is currently experiencing sleep difficulties, participation in this study might be right for you.

Please see the flyer for details.

Canadian TSC Educational Series – 2nd Session


Join us on Thursday June 13, 2024, at 6:00 pm EST for the 2nd session of the Canadian TSC Educational Series for caregivers and patients with TSC. This second session will focus on ‘What is routine follow-up in TSC: Across the ages’.

The symposium will be held on Google Meet.

Don’t forget to register using the link below:

Click here for link to: Registration for the Canadian TSC Educational Series

We hope to see you there!

TSC Awareness Month – fundraiser


Hi Everyone! May is TSC Awareness month.

Cathy Evanochko is a member of our VIP group and Chair Person for the TSC Canada non-profit, charitable organization dedicated to raising public awareness and support for individuals with TSC and their families. Her daughter has TSC.

Cathy created a fundraising website with Sipology to help raise funds to help with research and develop awareness about this disorder.  Use this shopping link to help support TSC Canada!


40% of all proceeds are returned to TSC Canada.  All items are priced $15 each and there is a flat shipping rate of $3 per order.

Let’s all pitch in and make a difference in the lives of individuals and their families impacted by TSC.
#tsccanada #TuberousSclerosisComplex #fundraising

Webinar – Thursday December 14th @ 8:00pm ET


Please join the TSC Alliance and Tuberous Sclerosis Canada Sclérose Tubéreuse (TSC Canada ST) on Thursday, December 14 at 8 pm ET to learn about the TSC Alliance’s ongoing research collaboration with Drs. Mark Keezer and Phillipe Major. They will be talking about ongoing efforts for the TSC Natural History Database and Biorepository and answer any questions regarding research for TSC in Canada.

Please register for the webinar using the link below.

Webinar Registration Link

Presenting the TÉCUM Program


Are you an adolescent or young adult with epilepsy or a family member or caregiver of such a person? The TÉCUM program (Transition en épilepsie complexe de l’Université de Montréal) is hosting a symposium that is meant for you!

On Thursday, December 7, 2023, from 5:30 to 6:30 p.m., Dr. Mark Keezer (CHUM) and Dr. Philippe Major (CHUSJ) will present the transition program.  There are two options to attend the evening conference:

1. Come to the CHUM at 1000 rue Saint-Denis, room A.02.9209A/B. Snacks will be served on site.

2. Attend the online presentation. The link will be provided upon registration.

It is mandatory to register via the form. You can scan the QR code (in the attached poster) or click here to access the registration form.

Speakers will present in French, but English subtitles will be available live.

TÉCUM Symposium Invitation – English

TÉCUM Symposium Invitation – French

Educational Series on TSC


An educational series to empower patients and their families with knowledge and resources related to TSC, are being planned by Canadian health care professionals.  They want your input on frequency, timing, and topics of the educational series.

Please take 1 minute to complete the survey: