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TSC In the News
Genetic Counselling and Reproductive Issues in TSC /reproductive health – Video
If you missed the last Canadian TSC Educational Series session – Genetic Counselling and Reproductive Issues in TSC /reproductive health, you can watch the videos using the link below:
Genetic Counselling and Reproductive Issues in TSC /reproductive health
Webinar March 20, 2025: Genetic Counseling and Reproductive Issues in TSC
Join us at the next Canadian TSC Educational Series symposium held on March 20th 2025 from 18:00 – 19:00 EST on Genetic Counselling and Reproductive Issues in TSC /reproductive health, presented by Mrs. Kristen Molher (genetic counsellor) from the CHUM.
Don’t forget to register using the link below:
Click here for link to: Registration for the Canadian TSC Educational Series
We hope to see you there!
2nd Canadian symposium on Tuberous Sclerosis Complex
The Centre Hospitalier Universitaire (CHU) and Centre Hospitalier de l’Université de Montréal (CHUM) are pleased to announce the return of their in-person symposium focused on Neurofibromatosis Type 1 and Tuberous Sclerosis Complex. The full announcement is provided below.
Save the Date!
We are excited to announce the 2nd Canadian symposium on Neurofibromatosis type 1 and Tuberous Sclerosis Complex, taking place on October 16th, 2025, at the CHU Sainte-Justine in Montréal, Québec.
Join us for an engaging and insightful event that is meant for patients and caregivers.
This will be a chance for people affected by NF or TSC from across the country to meet and exchange their experiences.
Experts from across Canada will gather to discuss and present on a variety of NF and TSC topics that are relevant to patients and their caregivers.
This event will be held in both English and French, with separate sessions that target NF and TSC audiences.
Stay tuned for more details – we look forward to welcoming you there!
Réservez la date !
Nous sommes heureux d’annoncer le 2e Symposium canadien sur la neurofibromatose type 1 et sclérose tubéreuse de Bourneville, qui se tiendra le 16 octobre 2025 au CHU Sainte-Justine à Montréal, Québec.
Joignez-vous à nous pour un événement captivant et enrichissant, destiné aux patients et aux proches aidants.
Ce sera l’occasion pour les personnes touchées par la NF ou STB à travers le pays de se rencontrer et d’échanger leurs expériences.
Des experts de partout au Canada se réuniront pour discuter et présenter divers sujets liés à la NF et STB, pertinents pour les patients et leurs proches aidants.
L’événement se tiendra en français et en anglais, avec des sessions séparées pour les publics NF et STB.
Restez à l’écoute pour plus de détails – nous avons hâte de vous y accueillir !
Introduction to TAND – Video
If you missed the last Canadian TSC Educational Series session – Introduction to TAND, you can watch the videos using the links below:
Introduction to TAND (PART 1)
Introduction to TAND (PART 2)
Introduction to TAND – Canadian TSC Educational Series
Join us on November 14th, 2024 from 6:00pm – 7:00pm EST. for the 4th session of the Canadian TSC Educational Series for caregivers and patients with TSC.
This session is an Introduction to TAND by Dr. Elisabetta Trinari (McMaster)
The symposium will be held on Google Meet.
Don’t forget to register using the link below:
Click here for link to: Registration for the Canadian TSC Educational Series
We hope to see you there!
Canadian TSC Educational Series – Session 3 Video
For those who were unable to join us for the 3rd session of the Canadian TSC Educational Series for caregivers and patients with TSC, the video can be viewed in the links below.
Management of epilepsy associated with TSC (PART 1)
Management of epilepsy associated with TSC (PART 2)
The next session ‘Introduction to TAND by Dr. Elisabetta Trinari’ is scheduled for November 14, 2024, from 6:00pm-7:00pm. For more information and to register, please use the link below:
Canadian TSC Educational Series – 3rd Session
Join us on September 12, 2024 from 6:00pm – 7:00pm EST. for the 3rd session of the Canadian TSC Educational Series for caregivers and patients with TSC. This 3rd session will focus on the management of epilepsy associated with TSC.
The symposium will be held on Google Meet.
Don’t forget to register using the link below:
Click here for link to: Registration for the Canadian TSC Educational Series
We hope to see you there!
Caregiver sleep study
The University of Birmingham are conducting a study ‘Understanding Caregiver Experiences of Sleep Management Difficulties in Individuals with Tuberous Sclerosis Complex’.
If you are a caregiver of a person with TSC who is currently experiencing sleep difficulties, participation in this study might be right for you.
Please see the flyer for details.
Canadian TSC Educational Series – 2nd Session
Join us on Thursday June 13, 2024, at 6:00 pm EST for the 2nd session of the Canadian TSC Educational Series for caregivers and patients with TSC. This second session will focus on ‘What is routine follow-up in TSC: Across the ages’.
The symposium will be held on Google Meet.
Don’t forget to register using the link below:
Click here for link to: Registration for the Canadian TSC Educational Series
We hope to see you there!
TSC Awareness Month – fundraiser
Hi Everyone! May is TSC Awareness month.
Cathy Evanochko is a member of our VIP group and Chair Person for the TSC Canada non-profit, charitable organization dedicated to raising public awareness and support for individuals with TSC and their families. Her daughter has TSC.
Cathy created a fundraising website with Sipology to help raise funds to help with research and develop awareness about this disorder. Use this shopping link to help support TSC Canada!
https://fundraise-ca.sipology.com/collections/may-tsc-awareness
40% of all proceeds are returned to TSC Canada. All items are priced $15 each and there is a flat shipping rate of $3 per order.
Let’s all pitch in and make a difference in the lives of individuals and their families impacted by TSC.
#tsccanada #TuberousSclerosisComplex #fundraising
