TSC In the News

TSC Clinic Survey

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We are looking for feedback on the Canadian TSC clinics that have been approved by the TS Alliance.

This survey is for patients and families of the both Toronto SickKids TSC clinic and Montreal TSC clinic Only. We hope you will take the time to fill
it out.

https://www.surveymonkey.com/r/TSCclinicsurvey

TSC Education and Gathering Event – Calgary

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Alberta Children’s Hospital is holding a Tuberous Sclerosis education and gathering event.

When: Friday, January 11, 2019

Where: 4th floor auditorium, Alberta Children’s Hospital

Time: 10:15 am to 5:00 pm

Please see the event poster for additional information.  We hope to see you there!

You must register by November 30th, 2018 by calling Barbara Fox at 403-955-7469

Event poster

CORD presents NATIONAL PHARMACARE WEBINAR DEBATES

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The biggest changes in over 30 years to drug regulations and drug plans in Canada will be implemented over the next year. Will your access to prescription drugs get better … or worse? Will the Ontario Conservative government’s rollback on OHIP+ (excluding kids with private drug coverage) affect a proposed National Pharmacare program? It’s up to you! Get informed to get involved.

The Canadian Organization for Rare Disorders invites you to learn more about the options for National Pharmacare. Click here for more info as well as an opportunity to share your opinion!

Information on how to register for the webinars and other details will be announced shortly.

Early Bird Deadline to Register for the 2018 World TSC Conference Ends June 1, 2018

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Co-hosted by the Tuberous Sclerosis Alliance and Tuberous Sclerosis Complex International (TSCi) and dedicated to the memory of Keith Hall, the 2018 World TSC Conference will bring together families and individuals with TSC, caregivers, healthcare professionals, researchers, a wide array of exhibitors, and others from across the globe. The conference will be held at the Hilton Anatole Hotel in Dallas, Texas July 26-29, 2018!

Register by Midnight on June 1, 2018 to get the lowest rate for the conference. Full conference registration is only $249 per person and covers educational sessions; breakfast, lunch and dinner; break snacks; and exhibit hall access. After June 1 the rate goes up to $350 per person for a full conference registration. Bring the family! Day camp is available for $75 per camper for the full conference.

Don’t miss the early bird rate – register today!

Calgary TSC Family Conference – Registration Now Open!

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Please join TS Canada ST for a TSC Family Conference on May 5, 2018 from 10:00 am to 4:00 pm at the Hotel Alma at the University of Calgary in Calgary, AB.

RSVP Here

This educational conference will provide families with opportunities to learn more about TSC including updates on treatment and research.  Information on speakers and an agenda can be found here.

There will also be a pre-conference workshop on behavioral manifestations and guidelines, also known as TSC-Associated Neuropsychiatric Disorders (TAND) starting at 9:00 am.

If you have any questions, please contact Cathy Evanocho at clevanochko@cbe.ab.ca.

THIS EVENT IS NOT AFFILIATED WITH NOR ENDORSED BY THE UNIVERSITY OF CALGARY.

Montreal Joint Conference

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CHU Sainte-Justine Hospital is proud to present a Neurofibromatosis and Tuberous Sclerosis Complex Joint Conference.

The conference is being held May 11, 2018 at CHU Sainte-Justine Hospital with the professional portion (English) for Tuberous Sclerosis Complex being held from 8:30am to 12pm and the family portion (French) for Tuberous Sclerosis Complex being held from 1pm to 5:15pm.

Program and additional details can be found here.

Register here.

 

Calgary TSC Conference – May 5, 2018

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Save the date!

Join TS Canada ST on May 5, from 10:00 to 2:00 (approx) for a TSC conference at Alberta Children’s Hospital, Calgary, AB. Speakers include Dr Fraser, Pulmonary specialist, Dr Bissler, nephrologist and researcher,  Dr. Bello, paediatric nephrologist, and Dr Appendino, paediatric epileptologist.

Registration will open March 26.

THANK YOU to Novartis for being the presenting sponsor.

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