For more information please visit the links below.

Press Conference Video: youtu.be/Lta3kLNOesw?a 

Global and Mail article: http://www.theglobeandmail.com/life/health-and-fitness/health/group-releases-strategy-to-help-canadians-with-rare-diseases-get-care/article24586987/

Help support this endeavor and sign the petition: http://ow.ly/NosTk