Updates to the guidelines and beyond
Two new papers have been published in Pediatric Neurology.
Updated International Tuberous Sclerosis Complex Diagnostic Criteria and Surveillance and Management Recommendations provide updated ‘gold standards’ for the diagnosis, surveillance and management of TSC. The update to the guidelines take into account advances in both TSC research and treatments.
Beyond The Guidelines: How We Can Improve Healthcare For People With Tuberous Sclerosis Complex Around The World is a white paper that identifies three priorities and provides associated recommendations for improving TSC care around the world.
These two very important papers are a step forward in improving the lives of those with TSC.