TSC In the News

2016 Vancouver TSC Educational Conference

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**NEW VENUE, NEW LOWER REGISTRATION FEES**

Join Us for the 2016 Vancouver TSC Educational Conference on September 16-17, 2016 in Vancouver, BC!

This one and a half day conference features leading researchers and clinicians specializing in TSC (both local and abroad) and will provide information on the latest research updates, diagnosis and treatment of TSC in both pediatrics and adults.

To register and for additional conference details, please click here

Vancouver Educational Meeting Flyer

TSC Global Awareness Day Video

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On May 15, organizations around the world celebrate Tuberous Sclerosis Complex (TSC) Global Awareness Day.v

RESEARCH OPPORTUNITY FOR TUBEROUS SCLEROSIS PATIENTS AND CAREGIVERS

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A major pharmaceutical manufacturer has commissioned market research to understand the unique experiences of TSC patients and their caregivers.

Your participation in this project will help to expand on new treatments, as well as enhance awareness and improve education about TSC.

Please click here for additional information.

 

 

Tuberous Sclerosis Canada Sclérose Tubéreuse and Tuberous Sclerosis Alliance Announce Formal Partnership

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In celebration of TSC Global Awareness day, Tuberous Sclerosis Canada Sclérose Tubéreuse (TS Canada ST) and the Tuberous Sclerosis Alliance (TS Alliance) are proud to announce they have joined in a partnership that will enhance community support, clinical care and research efforts in North America.

For complete details see our official joint statement.

JOINT STATEMENT TS Canada and TS Alliance

ANNOUNCING THE 2016 Vancouver TSC Educational Conference

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September 17th, 2016 * Vancouver, BC.

TS Canada ST in partnership with the TSC Clinic at BC Children’s Hospital is pleased to announce the 2016 family education conference for those with Tuberous Sclerosis Complex (TSC), their families and their caregivers.

This one –day conference will feature leading researchers and clinicians specializing in TSC (both local and from abroad) with topics relating to the latest research, diagnosis and treatment of TSC in both pediatrics and adults.  This conference will help you CONNECT with others, CONQUER the many challenges of TSC and CELEBRATE the hope of new treatments.

Plan now to join others affected by TSC along with leading TSC physicians and researchers.  Additional information regarding the agenda, registration and hotel information will be released in the following month.

Here are just some of the topics to date with more to follow, so stay tuned and save your spot early!!

  • Early diagnosis of TSC and the impact of genetics on diagnosis
  • Diagnosis and best practice in the management of Epilepsy in TSC and potential for prevention of epilepsy
  • The Neuropscychiatric problems in TSC: Diagnosis and Management
  • Behaviour problems in children with TSC
  • Management of Mood disorders in TSC in adults
  • Skin problems in TSC
  • Impact of mTOR inhibitors in the treatment of TSC/ new treatment for epilepsy
  • Renal disease in TSC: Prevention of complications/treatment
  • LAM disease in TSC

Pre-register now by emailing TSCconferenceVancouver@gmail.com

CALGARY WILD FOR A CURE!

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TS Canada ST is pleased to announce that we are holding a “WILD FOR A CURE” zoo walk fundraiser and family event in Calgary.

Where: Calgary Zoo
When: May 15, 2015 @ 9:30am
Details: 1km or 5km Run/Walk.  Following the run/walk, participants will enjoy a BBQ lunch at the Zoo and time to explore the Zoo for the remainder of the afternoon.

Register now for this event!  Go to www.runningroom.com to register

See attached poster for more information.

Calgary zoo walk poster

TORONTO WILD FOR A CURE!

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**REGISTRATION IS NOW CLOSED**

TS Canada ST is pleased to announce that we are holding a “WILD FOR A CURE” zoo walk fundraiser and family event!

Where: Toronto Zoo
When: May 15, 2016 @ 9:45am (walk starts at 10:00am)
Details: Following the walk, participants will enjoy a BBQ lunch at the Zoo Pavilion with up-close encounters, a scavenger hunt and time to explore the Zoo for the remainder of the afternoon.

Please email tsczoowalk@gmail.com to register.

TSC Zoo Walk Poster

 

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